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This blog is about our journey with life while living with cancer. John was diagnosed with Stage 4 colon cancer in February 2014. And so we walk "Side by Side." The title of the blog has been a phrase that Joyce and I have used for the past several years. It has been our way to deal with the reality that most plans and most days don't happen the way we had pictured it in our mind. And it has been our way to learn to anticipate the unexpected.

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Thursday, May 28, 2015

Hospice of Dayton

Hi everyone,

Dad has moved to Hospice of Dayton. It is a lovely, lovely place. No more beeping, flashing monitors and less tubes. Everyone we've talked to really appreciates this place and their staff.

Everything is very nature-oriented and just set up to be as relaxing as possible.
The entry:
The view from Dad's room, which many ducks wander past:
And some folks you may know.



As for Dad, right now they're calling his condition "fragile", they consider him only in the first of three stages of Hospice care....however, with all of his various issues, he could accelerate the timing. We may have a better idea tomorrow.

When we first arrived, around 6:00p or so, Mom was very leery about leaving Dad right after landing in a new place. One of the nurses on staff happened to be Mom's second cousin, Donna, who was just about to finish her shift. She offered to sit with Dad while we went to dinner, which was a great transition for us.

We did stay at our local friend's again overnight, but I think we're at enough of a comfort level now that we'll actually make it home tonight. At the hospitals, Mom always liked to be around for the staffing shift, to get reports and answer any blanks, as well as be an advocate for Dad's wishes. That's not needed here, as that's their whole focus, and if we miss the doctor making rounds, we can just call her back to the room any time of day.

Hospice is also very focused on family support as well, and among other things, we've enjoyed therapy dog visits and fresh strawberries plucked from the solarium! We've also made sure Dad knows how much of a gift he's given us by being very clear about his wishes to be here, not only for his peace, but ours, especially in his desire to make this as easy for Mom (and me) as well. Before Dad had ever gotten sick, he had a friend taken care of here and had expressed that if the time ever came he'd like to be here at Hospice of Dayton. And yesterday morning, he expressed that desire at least six times to various health professionals. He also immediately seemed more at peace once he realized we were indeed following through with his decision. I have to say, I agree with him. Have I mentioned it's a lovely place?

Visitors are allowed, any hour of day, and if you'd like to come, it's fine with us. A rough idea of when you might drop by is a great headsup so everyone doesn't show up at once. He's currently still recognizing friends, and often reaches slightly to hold a hand, but is increasingly sleepy with shorter responses. 

So many people have told us how much of a difference Dad has made in their lives. We have passed the messages along, often eliciting a "Wow." We even stopped by the 6th floor nurses at the hospital before we left and they discussed some "good advice he gave me." I love hearing the stories and sharing photos. Please feel free to continue, by sending them my way. Thank you all for all your kindness. I know you're reciprocating the life he lead....which is very cool.




4 comments:

  1. Erin,

    Glad you are out there to be with your dad and family. Prayers for strength and love are coming to all of you. -Will

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  2. Erin/Joyce/John,
    Son Jason has forwarded this blog to me. So sorry to hear that John's health is not good; glad to hear of wonderful care in a pleasant location. Please convey my prayers and concern. Many memories come to mind. I will include him in prayers at little country church I am serving in supposed retirement years.
    Tom Heil

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    Replies
    1. So good to hear from you, Tom. Dad has always been very clear that people should share this on, so glad Jason has.

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